Thinking back over the last few years following my recovery from Cushing’s disease, I still deal with some painful thoughts. To help process those thoughts, I wrote a letter to the person I was before my recovery, from the perspective of the person I currently am. In it, I reflect on my life since recovery.
Please note, trigger warnings in the following letter include anxiety, depression, body dysmorphia, and self-harm.
Congratulations on your diagnosis! I know it’s been a long time coming, but now you know what is happening and how to move forward.
I know you’ve been scared, but I’m extremely proud of how hard you’ve kept working on your undergraduate degree, planning your wedding, and continuing karate classes even though it seemed fruitless to do so. It shows a lot about your character, and you’ll need that in coming years.
Don’t be afraid of surgery, it actually will be the easiest part of recovery.
Although you’ve lost some friends along the way, please know it wasn’t your fault. Some people don’t know how to handle hardships, and they’ll decide to just leave. It’s not your job to make them to understand or to apologize for being sick.
You must do what you need to do to feel better and to heal. Those who left aren’t the people meant to stay in your life. Better people will come into your life soon and appreciate you for who you are.
I know your wedding is coming up, and you’re a little worried about your weight. You’ll lose some weight by the time July comes around, but it won’t be all gone. Honestly, Kat, you look so beautiful and happy with all of your family and friends gathered to celebrate you and Logan.
You are so lucky to have such an amazing man sticking by your side throughout this illness. There will be more tough times ahead, and guess what? He’s still here loving you with all his heart. Please don’t forget you’re so loved, kind, and beautiful in all your uniqueness!
You’re going to have a bout of anxiety and depression, and won’t be easy. For a couple years, things will be so distressing that you won’t want to live anymore. We’ll make it through, OK? Do you hear me? We’ll make it through. Please remember my words.
Treatment will be the hardest thing you’ll ever have to do, but we have an amazing support system in our close friends and in Logan. You are not alone.
Please focus on a healthy relationship with food. I know you have a panic attack every time you eat, but try not to fear it. Instead, cherish food for how it supports your body and helps it to function.
Also, every time you panic, it isn’t the end of the world, so stop calling 911, and focus on breathing! You have so many ambulance bills by now, so you really need to believe in yourself and believe that you’ll survive. And please stop hurting yourself.
Finally, you need to help others who are in your situation now. People are going to ask for help and advice, and you have to help. I know you’re already passionate about helping others, and this isn’t a difficult task to ask of you. But I really believe that because of Cushing’s, we can help others even more.
It’s a scary time, but you’ll get through it. Comfort others with the knowledge that they can get through it, too.
Last, but not least, I love you, and I’m so happy with where we are in life right now.
Thank you for sharing this vulnerable experience with me, reader. Please know there are people who can help and who care.
Note: Cushing’s Disease News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Cushing’s Disease News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to Cushing’s.
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