News

Despite Remission, Patients Have 2 Times Higher Risk of Death

Even with biochemical remission — having normal biochemical markers for liver inflammation — patients with Cushing’s disease have a two times higher risk of mortality compared with people without the disorder, a Swedish study found. Cardiovascular diseases and infections were the main causes of death, highlighting the importance of close…

Risk of Eye Disorder Seen With Subclinical Cushing’s Syndrome

Subclinical Cushing’s syndrome may be a risk factor for developing central serous chorioretinopathy, an eye disorder wherein fluid accumulates at the back of the eye, according to a recent case report. The report, “Association of chronic central serous chorioretinopathy with subclinical Cushing’s syndrome,” was published in the American…

#RAREis Representation Program Promotes Equity, Diversity

Horizon Therapeutics has launched its #RAREis Representation program aimed at increasing diversity, equity, and inclusion among patients with rare diseases. There are about 400 million people worldwide living with a rare disease; for many of them, access to diagnosis, care, and treatments can be challenging. Accessing better care depends on…

Low Vitamin D Levels in Patients Improved With Supplements

People with Cushing’s disease have a high risk of being deficient in vitamin D, but taking supplements can improve those levels, a new study indicates. Results also showed that lower vitamin D levels are associated with higher levels of cortisol, a stress hormone that is elevated in Cushing’s. The…

Rare Disease Day Panel Opens Window to Patient Experience

BioNews, the publisher of this website, hosted a virtual panel discussion on Rare Disease Day 2022, taking a deeper dive into what it’s like to live with a rare disease, including conversations about advocacy, mental health, survivor’s guilt, treatment of minority patients, and more. The Monday event, “A…