News

Test Key to Confirming Cushing’s Linked to Pregnancy, Report Suggests

A stimulation test with human choriogonadotropin (hCG) — a hormone normally produced by the placenta to sustain pregnancy — should be performed very soon after a women suspected of pregnancy-induced Cushing’s syndrome gives birth, to confirm a diagnosis, a case report highlighted. The case report, “Pregnancy-induced Cushing’s…

NORD’s Caregiver Respite Program Continues Through Pandemic

Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and dedication. To help meet that need, the National Organization for Rare Disorders (NORD)’s Rare Caregiver Respite Program may be a helpful resource. The program seeks to give a…

COVID-19 May Be Severe in Cushing’s Patients, Case Report Suggests

A young healthcare worker who contracted COVID-19 shortly after being diagnosed with Cushing’s disease was detailed in a case report from Japan. While the woman was successfully treated for both conditions, Cushing’s may worsen a COVID-19 infection. Prompt treatment and multidisciplinary care is required for Cushing’s patients who…

Clinical Trial Will Test Fluasterone in Cushing’s Syndrome

SteroTherapeutics and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) are teaming up to conduct a Phase 2 clinical trial to determine the safety, efficacy, and dosage regimen for fluasterone as a potential treatment for the metabolic manifestations of Cushing’s syndrome. “This…

EURORDIS Award Contest Welcomes Photos of Life With Rare Disease

The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life is like with a rare disease, while raising awareness through their work of these disorders. Submissions for next year’s awards are open until Jan. 31. The competition is organized by France-based EURODIS, an alliance…

Recorlev Lessens Cushing’s Symptoms, Eases Depression, SONICS Trial Data Show

Recorlev (levoketoconazole), Strongbridge Biopharma’s oral investigational therapy, lessens disease symptoms and depression, and improves quality of life among people with endogenous Cushing’s syndrome, according to data from the Phase 3 SONICS trial. Notably, the therapy was found to particularly ease symptoms among female patients. “People with Cushing’s syndrome…