September 11, 2020September 11, 2020
LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show
News
Patients with endogenous Cushing’s syndrome who stopped using Recorlev (levoketoconazole) and moved to a placebo in a study started having ... Read more
September 10, 2020September 9, 2020
My Emotional Struggles with Cushing’s Brought Dark Days
Columns, Perpetually Cushie – a Column by Kat Rees
During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before that, although I had ... Read more
September 9, 2020September 9, 2020
High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism
News
Abnormally high levels of cortisol in the urine — one of the hallmarks of Cushing’s syndrome — seem to ... Read more
September 4, 2020September 4, 2020
New Cushing’s Saliva Test Does Not Meet Standard Methods, Study Shows
News
An alternative diagnostic test to measure the levels of late-night cortisol in the saliva of patients with Cushing’s disease ... Read more
September 2, 2020September 2, 2020
Same But Different Photo Contest Celebrates People With Rare Diseases
News, syndicated
Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography ... Read more
August 26, 2020August 26, 2020
Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
News, syndicated
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search ... Read more
August 21, 2020August 21, 2020
Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s
News
Dissolving hydrocortisone tablets in water for multiple daily dosing to treat congenital adrenal hyperplasia (CAH) in children may result ... Read more
August 19, 2020August 19, 2020
EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
News, syndicated
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare ... Read more
August 13, 2020August 13, 2020
How Cushing’s Syndrome Changed My Social Life
Columns, Perpetually Cushie – a Column by Kat Rees
I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor ... Read more
August 12, 2020August 12, 2020
New Streaming Channel Showcases Rare Disease Films
News, syndicated
When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers ... Read more
August 5, 2020August 5, 2020
Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show
News
Treatment with Isturisa (osilodrostat) led to a rapid and sustained reduction in cortisol levels and was well-tolerated in people ... Read more
July 29, 2020July 29, 2020
Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin
News
The first patient has been enrolled in Corcept Therapeutics‘ Phase 3 GRADIENT trial, which is evaluating relacorilant as a ... Read more

Author Details

Joe Pierce

September 11, 2020September 11, 2020

LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show

News

Patients with endogenous Cushing’s syndrome who stopped using Recorlev (levoketoconazole) and moved to a placebo in a study started having their urine cortisol levels rise in response to lack of ... Read more

September 10, 2020September 9, 2020

My Emotional Struggles with Cushing’s Brought Dark Days

Columns, Perpetually Cushie – a Column by Kat Rees

During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before that, although I had always been shy, I usually felt comfortable around my closest ... Read more

September 9, 2020September 9, 2020

High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism

News

Abnormally high levels of cortisol in the urine — one of the hallmarks of Cushing’s syndrome — seem to be associated with alterations in blood sugar metabolism in obese ... Read more

September 4, 2020September 4, 2020

New Cushing’s Saliva Test Does Not Meet Standard Methods, Study Shows

News

An alternative diagnostic test to measure the levels of late-night cortisol in the saliva of patients with Cushing’s disease did not meet the standards of currently used methods, a ... Read more

September 2, 2020September 2, 2020

Same But Different Photo Contest Celebrates People With Rare Diseases

News, syndicated

Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography competition to raise awareness for rare diseases. Under the theme ... Read more

August 26, 2020August 26, 2020

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

News, syndicated

Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for new medicines for rare disorders and incorporating more patient ... Read more

August 21, 2020August 21, 2020

Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s

News

Dissolving hydrocortisone tablets in water for multiple daily dosing to treat congenital adrenal hyperplasia (CAH) in children may result in higher-than-intended dosing and exogenous Cushing’s syndrome — a form ... Read more

August 19, 2020August 19, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

News, syndicated

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. ... Read more

August 13, 2020August 13, 2020

How Cushing’s Syndrome Changed My Social Life

Columns, Perpetually Cushie – a Column by Kat Rees

I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor believes the tumor in my adrenal gland began growing when ... Read more

August 12, 2020August 12, 2020

New Streaming Channel Showcases Rare Disease Films

News, syndicated

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the ... Read more