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4 things not to say to someone with a chronic illness

Having Cushing’s disease has changed me in a thousand ways. In some ways, I’m better off. I’m kinder, I have an amazing community full of chronically ill friends, and I’ve become an advocate for people with Cushing’s. In other ways, my life is worse. I’m in constant pain,…

How to take up space without guilt or apologies

I’ve always had difficulty with taking up space. But after I became chronically ill with Cushing’s disease, it’s been even harder for me to simply exist without feeling like a burden. I often worry about how my illness affects others. I’m unable to go places without an elevator…

How I combat hair loss caused by Cushing’s disease

One symptom of Cushing’s disease that really affected me was hair loss. My hair is my favorite feature; it’s curly like my mom’s, which always made me feel beautiful. Watching it fall out in clumps was traumatizing and scary, and it made me incredibly sad and self-conscious. I started…