‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those ... Read more
Updates
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Temozolomide Effective Against Cushing’s Caused by Aggressive Tumors, Case Report Suggests
The oral chemotherapy temozolomide might be an effective treatment for Cushing’s disease caused by aggressive tumors in the pituitary gland that continue to grow ... Read more -
Endoscopic Endonasal Surgery is Safe, Effective for Treating Cushing’s Patients, Study Concludes
Clinical outcomes of Cushing’s disease patients who undergo endoscopic endonasal surgery to remove a pituitary adenoma are similar to those seen in patients who ... Read more -
Hormonal Stimulation Improves Tumor Detection in Cushing’s, Study Finds
Giving corticotropin-releasing hormone (CRH) to Cushing’s disease patients helps improve the detection of pituitary tumors on positron emission tomography (PET) scans, increasing the chances ... Read more -
HRA Pharma Prepares Observational Post-Approval Study of Ketoconazole
After receiving the approval of ketoconazole for the treatment of Cushing’s syndrome patients in the European Union, HRA Pharma is setting up to conduct ... Read more
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Cushing’s Patients with Excess Prolactin Respond Well to Dopamine Agonists, Report Suggests
In some rare cases, Cushing’s disease patients have a benign pituitary tumor that produces several ... -
Surgical Removal of Pituitary Adenomas Through the Nose Remains an Effective Treatment for Pediatric Patients, Study Finds
Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains ... -
Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
RaDaR, the catchy new name for the U.S. government-run Rare Diseases Registry Program, aims ... -
EU Committee Recommends Giving Relacorilant Orphan Drug Status for Cushing’s Syndrome
The European Medicine Agency‘s Committee for Orphan Medicinal Products (COMP) has recommended that Corcept Therapeutics‘ ... -
Mifepristone May Benefit Patients with Mild Autonomous Cortisol Secretion, Pilot Trial Shows
Mifepristone, a synthetic steroid commonly used to taper high blood sugar levels and diminish ... -
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
With 250 rare diseases newly identified every year, scientists can barely keep up — ...
Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows
News
Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more