Updates

Author Details

Joe Pierce

March 5, 2021March 5, 2021
Recorlev Up for FDA Approval as Endogenous Cushing’s Syndrome Treatment

Strongbridge Biopharma has filed an application with the U.S. Food and Drug Administration (FDA) seeking the approval of Recorlev (levoketoconazole) to treat people with endogenous Cushing’s syndrome, the company ... Read more
March 3, 2021March 3, 2021
Some Patients at Higher Risk of Hyperlipidemia Despite Surgery

Disruptions in blood sugar metabolism and hypercortisolism — excessive levels of the hormone cortisol in the blood — are both linked to a higher ... Read more
February 26, 2021February 26, 2021
Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from ... Read more
February 24, 2021February 24, 2021
Cushing’s Found to Cause ‘Persistent Mental Health Problems’ in Patients

For years before and after their diagnosis, people with Cushing’s disease use more psychotropic medications — those that affect mood, thoughts, or perception — ... Read more
February 22, 2021February 22, 2021
Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1, will feature panel discussions, patient stories, ... Read more

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Author Details

Joe Pierce

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May 22, 2018

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

News

Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more

Updates

Recorlev Up for FDA Approval as Endogenous Cushing’s Syndrome Treatment

Some Patients at Higher Risk of Hyperlipidemia Despite Surgery

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Cushing’s Found to Cause ‘Persistent Mental Health Problems’ in Patients

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

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Successful Cushing’s Surgery Leads to Better Bone Density, Study Finds

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Potential Oral ACTH Inhibitor for Cushing’s Disease Entering Phase 1 Trial

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Treatment for Rare Cancer May Help Cushing’s Patients

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Consider Possibility of Cushing’s Disease in Patients With Adrenal Tumor

Irisin Hormone Levels May Help Diagnose Muscle, Bone Weakness

COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say

4-year-old Child Successfully Treated for Rare Cushing’s Syndrome

Test Key to Confirming Cushing’s Linked to Pregnancy, Report Suggests

NORD’s Caregiver Respite Program Continues Through Pandemic

Etomidate Lowers Severely High Cortisol in Infant With Adrenal Cushing’s

COVID-19 May Be Severe in Cushing’s Patients, Case Report Suggests

MRI Better Than IPSS at Locating Pituitary Tumors, Researchers Conclude

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Clinical Trial Will Test Fluasterone in Cushing’s Syndrome

EURORDIS Award Contest Welcomes Photos of Life With Rare Disease

Recorlev Lessens Cushing’s Symptoms, Eases Depression, SONICS Trial Data Show

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

Seeing Beyond the Stereotypes

Epidural Steroid Injections May Increase Risk of Adrenal Insufficiency, Study Finds

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Rare Case of Cushing’s Disease Due to ‘Collision’ Brain Tumor Reported

Patients With Ectopic Cushing’s Face Healthcare Challenges in Colombia, Study Says

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows