Updates

Author Details

Joe Pierce

May 19, 2020May 19, 2020
Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual conference, bringing some 1,500 delegates from 57 countries together ... Read more
May 15, 2020May 15, 2020
Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome

Strongbridge Biopharma has finished enrolling patients in its Phase 3 LOGICS clinical trial assessing the safety and effectiveness of Recorlev (levoketoconazole) to treat endogenous Cushing’s ... Read more
May 13, 2020May 13, 2020
Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the COVID-19 outbreak is affecting people with rare ... Read more
May 8, 2020May 8, 2020
Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment

The Phase 3 GRACE clinical trial evaluating Corcept Therapeutics‘ relacorilant as a potential treatment for high blood pressure and poor glucose tolerance in people ... Read more
May 1, 2020May 1, 2020
NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

As the number of Americans infected with COVID-19 surpasses one million, it’s no surprise that people with rare diseases — whose immune systems were ... Read more

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Author Details

Joe Pierce

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May 22, 2018

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

News

Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more

Updates

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

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Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports

AACE Issues Advice for Cushing’s Patients During Pandemic

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Adrenal Surgery Causes Persistent Decrease in Kidney Function in Cushing’s Patients, Study Suggests

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Adrenal Gland Surgeries May Be Safer if Incisions Made to Back

Study Recommends ARMC5 Gene Analysis for Cushing’s Patients With Bilateral Adrenal Masses

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

Researchers Establish Cutoff Value for Dexamethasone in Cushing’s Tests

FDA Approves New Oral Treatment Isturisa for Cushing’s Disease

Metabolic Changes in Cushing’s Likely Mediated by Organ Interactions, Mouse Study Suggests

Recordati Rare Diseases Will Market Signifor, Signifor LAR in U.S.

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

Mutations in Internal Clock Regulators May Be Root Cause of Cyclic Cushing’s, Case Report Suggests

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

Case Report Points to Subclinical Cushing’s Syndrome as Possible Diagnosis in Pregnancy with Preeclampsia

Both Forms of Cushing’s, Exogenous and Endogenous, Found in Woman in Case Report

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

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Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Subscribe to our mailing list

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports

AACE Issues Advice for Cushing’s Patients During Pandemic

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Adrenal Surgery Causes Persistent Decrease in Kidney Function in Cushing’s Patients, Study Suggests

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Adrenal Gland Surgeries May Be Safer if Incisions Made to Back

Study Recommends ARMC5 Gene Analysis for Cushing’s Patients With Bilateral Adrenal Masses

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

Researchers Establish Cutoff Value for Dexamethasone in Cushing’s Tests

FDA Approves New Oral Treatment Isturisa for Cushing’s Disease

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

Metabolic Changes in Cushing’s Likely Mediated by Organ Interactions, Mouse Study Suggests

Recordati Rare Diseases Will Market Signifor, Signifor LAR in U.S.

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

Mutations in Internal Clock Regulators May Be Root Cause of Cyclic Cushing’s, Case Report Suggests

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

Case Report Points to Subclinical Cushing’s Syndrome as Possible Diagnosis in Pregnancy with Preeclampsia

Both Forms of Cushing’s, Exogenous and Endogenous, Found in Woman in Case Report

Pin It on Pinterest