Updates

Author Details

Joe Pierce

August 13, 2020August 13, 2020
How Cushing’s Syndrome Changed My Social Life

I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor believes the tumor in my ... Read more
August 12, 2020August 12, 2020
New Streaming Channel Showcases Rare Disease Films

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a ... Read more
August 5, 2020August 5, 2020
Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show

Treatment with Isturisa (osilodrostat) led to a rapid and sustained reduction in cortisol levels and was well-tolerated in people with Cushing’s disease, according to ... Read more
July 29, 2020July 29, 2020
Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin

The first patient has been enrolled in Corcept Therapeutics‘ Phase 3 GRADIENT trial, which is evaluating relacorilant as a potential treatment for people with ... Read more
July 24, 2020August 6, 2020
Ketoconazole May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available

Note: This story was updated Aug. 6, 2020, to note that ketoconazole is approved to treat Cushing’s in Europe and is used off-label for ... Read more

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Author Details

Joe Pierce

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May 22, 2018

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

News

Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more

Updates

New Streaming Channel Showcases Rare Disease Films

Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show

Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin

Ketoconazole May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available

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Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany

Smart Contact Lens Shows Ability to Measure Cortisol Levels

Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

Adrenal Cushing’s Syndrome More Common in Southeast Asia, Study Finds

Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows

Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say

Coalition Will Address Racial Disparities in Rare Disease Communities

Isturisa Now Available in France, Recordati Announces

Isturisa Now Available for Adult Cushing’s Patients in the U.S.

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

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How Cushing’s Syndrome Changed My Social Life

New Streaming Channel Showcases Rare Disease Films

Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show

Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin

Ketoconazole May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available

Subscribe to our mailing list

Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany

Smart Contact Lens Shows Ability to Measure Cortisol Levels

Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Adrenal Cushing’s Syndrome More Common in Southeast Asia, Study Finds

Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows

Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say

Coalition Will Address Racial Disparities in Rare Disease Communities

Isturisa Now Available in France, Recordati Announces

Isturisa Now Available for Adult Cushing’s Patients in the U.S.

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports

Pin It on Pinterest