Updates

Author Details

Joe Pierce

November 26, 2020November 26, 2020
Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their ... Read more
November 25, 2020November 25, 2020
Rare Case of Cushing’s Disease Due to ‘Collision’ Brain Tumor Reported

Researchers report a very rare case of Cushing’s disease in a 34-year-old woman caused by a “collision” brain tumor, a tumor simultaneously consisting of a ... Read more
November 18, 2020November 18, 2020
Patients With Ectopic Cushing’s Face Healthcare Challenges in Colombia, Study Says

Patients with ectopic Cushing’s syndrome face challenges in their healthcare management if they live in developing countries, according to a study of cases in ... Read more
November 18, 2020November 18, 2020
Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and ... Read more
November 13, 2020November 13, 2020
Cushing’s Disease Linked to Rare Pituicytoma in Case Report

Although rare, pituicytomas should still be considered as a possible cause of Cushing’s disease in patients experiencing the typical symptoms of the disease, a ... Read more

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Author Details

Joe Pierce

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May 22, 2018

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

News

Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more

Updates

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

Rare Case of Cushing’s Disease Due to ‘Collision’ Brain Tumor Reported

Patients With Ectopic Cushing’s Face Healthcare Challenges in Colombia, Study Says

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Cushing’s Disease Linked to Rare Pituicytoma in Case Report

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A Letter to My Newly Diagnosed Self

AllianceRx Walgreens Prime Chosen as Sole Supplier of Metopirone in US

Report Describes Two Cases of Cushing’s Syndrome Diagnosis After Pregnancy

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Isturisa Quickly, Safely Lowers Cortisol Levels in 3 Severe Cushing’s Cases

Even Slightly High Cortisol Levels Can Have Negative Impact on Mental Health

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

This Is What Trauma Looks Like to Me

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Bone Cancer Case Highlights Need for Long-term Monitoring After Radiotherapy for Cushing’s

Retrospective Cushing’s Diagnosis Done via Hair Test, Case Report Shows

Topical Steroid Use While on HIV Therapy May Lead to Cushing’s, Case Study Shows

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Obese Patients Don’t Need Cushing’s Screenings Prior to Weight-loss Surgery

Muscle Weakness Persists in Cushing’s Syndrome Despite Remission, Study Finds

Patients Prefer ONDST Over 24-Hour Urine Analysis as First Cushing’s Test, Per Study

Study Provides Further Evidence of Cognitive, Emotional Difficulties in Cushing’s Syndrome

Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial

2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease

LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show

My Emotional Struggles with Cushing’s Brought Dark Days

High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism

New Cushing’s Saliva Test Does Not Meet Standard Methods, Study Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows