Updates

Author Details

Joe Pierce

October 23, 2020October 23, 2020
UK Organization ’Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

A photo of a bespectacled young boy, his red baseball cap slightly askew as he enjoys time outside, will be featured on the front ... Read more
October 22, 2020October 20, 2020
This Is What Trauma Looks Like to Me

When I hear the word “trauma,” I think about car accidents, fires, military deployments, and abuse. I think of movies with sad music and ... Read more
October 21, 2020October 20, 2020
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its ... Read more
October 16, 2020October 16, 2020
Bone Cancer Case Highlights Need for Long-term Monitoring After Radiotherapy for Cushing’s

A 67-year-old woman developed bone cancer 30 years after receiving radiation therapy to treat Cushing’s disease, according to a case report. Although the risk ... Read more
October 14, 2020October 14, 2020
Retrospective Cushing’s Diagnosis Done via Hair Test, Case Report Shows

A woman with undiagnosed Cushing’s disease experienced a resolution of her hypercortisolism symptoms after a spontaneous pituitary apoplexy, and was retrospectively diagnosed via hair ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Author Details

Joe Pierce

Thanks! Please check your email for a confirmation email.

May 22, 2018

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

News

Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more

Updates

UK Organization ’Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

This Is What Trauma Looks Like to Me

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Bone Cancer Case Highlights Need for Long-term Monitoring After Radiotherapy for Cushing’s

Retrospective Cushing’s Diagnosis Done via Hair Test, Case Report Shows

Subscribe to our mailing list

Topical Steroid Use While on HIV Therapy May Lead to Cushing’s, Case Study Shows

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Obese Patients Don’t Need Cushing’s Screenings Prior to Weight-loss Surgery

Muscle Weakness Persists in Cushing’s Syndrome Despite Remission, Study Finds

Patients Prefer ONDST Over 24-Hour Urine Analysis as First Cushing’s Test, Per Study

Study Provides Further Evidence of Cognitive, Emotional Difficulties in Cushing’s Syndrome

Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial

2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease

LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show

My Emotional Struggles with Cushing’s Brought Dark Days

High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism

New Cushing’s Saliva Test Does Not Meet Standard Methods, Study Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

New Streaming Channel Showcases Rare Disease Films

Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show

Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin

Ketoconazole May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available

Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany

Smart Contact Lens Shows Ability to Measure Cortisol Levels

Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

Pin It on Pinterest

UK Organization ’Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

This Is What Trauma Looks Like to Me

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Bone Cancer Case Highlights Need for Long-term Monitoring After Radiotherapy for Cushing’s

Retrospective Cushing’s Diagnosis Done via Hair Test, Case Report Shows

Subscribe to our mailing list

Topical Steroid Use While on HIV Therapy May Lead to Cushing’s, Case Study Shows

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Obese Patients Don’t Need Cushing’s Screenings Prior to Weight-loss Surgery

Muscle Weakness Persists in Cushing’s Syndrome Despite Remission, Study Finds

Patients Prefer ONDST Over 24-Hour Urine Analysis as First Cushing’s Test, Per Study

Study Provides Further Evidence of Cognitive, Emotional Difficulties in Cushing’s Syndrome

Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial

2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease

LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show

My Emotional Struggles with Cushing’s Brought Dark Days

High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism

New Cushing’s Saliva Test Does Not Meet Standard Methods, Study Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

How Cushing’s Syndrome Changed My Social Life

New Streaming Channel Showcases Rare Disease Films

Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show

Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin

Ketoconazole May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available

Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany

Smart Contact Lens Shows Ability to Measure Cortisol Levels

Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

Pin It on Pinterest