Updates

Author Details

Joe Pierce

September 18, 2020September 18, 2020
Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial

Metopirone (metyrapone) safely normalized, or at least lowered by half, the levels of cortisol found in the urine of patients with endogenous Cushing’s syndrome, ... Read more
September 16, 2020September 16, 2020
2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease

A combination of bexarotene and lapatinib, two approved anti-cancer medications, may hold promise in treating Cushing’s disease, according to a recent study. The study, “Bexarotene combined ... Read more
September 11, 2020September 11, 2020
LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show

Patients with endogenous Cushing’s syndrome who stopped using Recorlev (levoketoconazole) and moved to a placebo in a study started having their urine cortisol levels rise ... Read more
September 10, 2020September 9, 2020
My Emotional Struggles with Cushing’s Brought Dark Days

During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before that, although I had always been shy, I usually ... Read more
September 9, 2020September 9, 2020
High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism

Abnormally high levels of cortisol in the urine — one of the hallmarks of Cushing’s syndrome — seem to be associated with alterations in ... Read more

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Author Details

Joe Pierce

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May 22, 2018

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

News

Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more

Updates

Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial

2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease

LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show

My Emotional Struggles with Cushing’s Brought Dark Days

High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism

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New Cushing’s Saliva Test Does Not Meet Standard Methods, Study Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

New Streaming Channel Showcases Rare Disease Films

Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show

Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin

Ketoconazole May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available

Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany

Smart Contact Lens Shows Ability to Measure Cortisol Levels

Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

Adrenal Cushing’s Syndrome More Common in Southeast Asia, Study Finds

Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows

Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say

Coalition Will Address Racial Disparities in Rare Disease Communities

Isturisa Now Available in France, Recordati Announces

Isturisa Now Available for Adult Cushing’s Patients in the U.S.

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

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Metopirone Safely Normalized, or Significantly Lowered, Urine Cortisol Levels in Phase 3/4 Trial

2 Cancer Meds May be Promising Combo Treatment for Cushing’s Disease

LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Levels, Data Show

My Emotional Struggles with Cushing’s Brought Dark Days

High Cortisol Levels in Urine May Be Linked to Changes in Blood Sugar Metabolism

Subscribe to our mailing list

New Cushing’s Saliva Test Does Not Meet Standard Methods, Study Shows

Same But Different Photo Contest Celebrates People With Rare Diseases

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Dissolving Hydrocortisone Tablets for CAH May Lead to Higher Dosing, Cushing’s

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

How Cushing’s Syndrome Changed My Social Life

New Streaming Channel Showcases Rare Disease Films

Isturisa Leads to Rapid, Sustained Reduction in Cortisol Levels, Data Show

Phase 3 Relacorilant Trial Enrolling Cushing’s Patients With Adrenal Origin

Ketoconazole May Be Better Choice for Cushing’s Syndrome Patients When Surgery Is Not Available

Isturisa, Oral Treatment for Cushing’s Syndrome, Available in Germany

Smart Contact Lens Shows Ability to Measure Cortisol Levels

Estrogen Receptor Alpha May Be Involved in Development of Cushing’s During Pregnancy

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Adrenal Cushing’s Syndrome More Common in Southeast Asia, Study Finds

Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows

Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say

Coalition Will Address Racial Disparities in Rare Disease Communities

Isturisa Now Available in France, Recordati Announces

Isturisa Now Available for Adult Cushing’s Patients in the U.S.

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Pin It on Pinterest