Cushing’s disease causes a great deal of change, both physical and emotional. For some, these changes happen slowly over time, while for others, they’re more rapid. About four years passed between the onset of my symptoms and my diagnosis. The differences in how I felt were subtle, making it…
Columns
An advocate’s most important characteristics are authenticity and transparency. When we share our stories with others, it’s important to tell the entire story, not just the best parts. Journeys are not always beautiful. They can be dark, nasty, and ugly, but if you can persevere, rewards await you. Never lose…
The crisp morning felt surreal. Whimsical frost on leaves outside my window reminded me that life has its seasons. Some seasons we succumb to struggles that we think hold us back, and other seasons we live in celebrations of triumph, with knowledge that there is sunshine after rain. It was…
Traveling with an invisible illness can be physically demanding and emotionally taxing. So much planning is involved, along with so much physical movement and running around. Being away from your normal element and comfort items can be a difficult transition as well. Living away from my home state, where my…
I met my wife 15 years ago. At the time, I was just starting a career, I was active and regularly worked out, and I had a nice physique. My confidence was high. Then, in my early 30s, my wife started to question whether I was still attracted to her.
Columns
Finding Strength in Adversity
Master Chief Boatswain’s Mate Carl Brashear‘s name is synonymous with resilience and determination. Brashear, who became the first Black master diver in the U.S. Navy, had to deal with pervasive racism from Navy colleagues. Additionally, in 1966, he suffered an injury that resulted in the amputation of his leg.
Last weekend, I watched three really good movies: “Spider-Man: No Way Home,” “A Journal For Jordan,” and “Avengers: Endgame.” They had great directing, acting, and life lessons, and each conveyed major themes about choice and time. On Nov. 9, 2015, I underwent transsphenoidal surgery that lasted about five hours.
If you or a doctor suspect you have Cushing’s disease, what happens next? While the testing process can be lengthy, it’s worth the effort to find answers. People often ask me about the diagnostic process on Instagram, so I decided to share my experience here. If you’re struggling to…
Welcome to “Half the Battle,” a new column about my experience with Cushing’s disease. My name is Caitlin, I’m 30 years old, and from the U.S. Northeast. I was diagnosed with Cushing’s disease six years ago. My hope for this column is that it will provide insight into what…
What is a typical day like for someone dealing with Cushing’s disease? Some people who are unfamiliar with this disease have asked me this question. My usual answer is, “It’s fine.” But to be honest, it is not fine — it can be extremely difficult. I can’t speak for everyone,…
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