The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
Articles by Mary Chapman
The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life is like with a…
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
As people with uncontrolled Cushing’s syndrome and adrenal insufficiency are at a relatively higher risk of infection,…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…