It was 4:30 a.m. when I sat up in bed, eyes wide open. As I looked down at myself, I was filled with embarrassment. Had I just wet the bed? I rushed to the bathroom, feeling more humiliated than anything. I was about 25 weeks pregnant and couldn’t believe this…
Chronically Yours – a Column by Noura Costany
“Let’s go around the table and share what we’re thankful for.” It’s the typical question we all hear during Thanksgiving. For me, my answer never changes. I’m incredibly thankful for my partner, who is not only an amazing husband but also a fantastic caregiver. I’m so grateful to have him…
“We need you to come to the hospital.” I never expected to hear those words when I did. I was 25 weeks pregnant, and everything had been going relatively smoothly. Sure, I’d dealt with some minor issues like skin problems and fatigue, but nothing alarming. A few days before…
Cushing’s disease has affected my skin for more than five years now. I started noticing skin issues in 2020, and now they’re all starting to reappear. I’ve been off my Cushing’s medications for about seven months because I’m pregnant. The drugs could be dangerous for my baby,…
I’m more than halfway through my pregnancy, which seems to be going incredibly fast. The egg retrieval procedure was last year, and our first embryo transfer was last June. My partner and I were lucky the first transfer worked, and now I’m over 23 weeks pregnant. It’s been an exciting…
I turn 30 in a few months, which has me reflecting on how my life has unfolded. Have I done enough to give back to others? Am I as far along with my career and other ambitions as my peers are? Reflecting helps me outline the things I still want…
I am a big believer in science, and I’m grateful that many vaccinations exist to keep me healthy and safe. But I also tend to have strong reactions to vaccines, partly due to my Cushing’s disease. Cushing’s disease weakens the muscles and thins the skin, which means injections can…
I generally like my health insurance plan, because it covers a lot of what I need. But I have Cushing’s disease, which is complex and can lead to complications with my insurance coverage. Here’s a recent example: Step one: I had a regular checkup with my OB-GYN. Because I…
I’m currently about halfway through my pregnancy, which is an amazing and exciting feat. To ensure the baby’s safety, I am currently off most of my medications for Cushing’s disease. I am currently taking the following medications and supplements: Synthroid (levothyroxine) Prenatal vitamins Vitamin D Iron Vitamin…
Working out with Cushing’s disease can be incredibly tough. I have weak bones and nonexistent muscles, and starting any new workout routine is intimidating. I’ve tried lifting, Pilates, yoga, running (the worst for my body), and even spin classes. When I was living in New York City,…
Recent Posts
- Real-world study backs Isturisa for non-pituitary Cushing’s forms
- New research shows Cushing’s adds hidden fat BMI may overlook
- Isturisa exposure early in pregnancy may be less risky than thought
- Alternative neck access allows doctors to complete key test
- A pregnancy complication leads to yet another hospital admission
- Cushing’s patient’s psychiatric shifts tied to rapid Isturisa dose increase
- Years may pass by, but what I’m thankful for never changes
- Rare ‘double Cushing’s’ case highlights need to check cortisol
- Effective treatment found to ease depression, anxiety in Cushing’s
- High blood pressure and a history of Cushing’s land me in the hospital