Working out with Cushing’s disease can be incredibly tough. I have weak bones and nonexistent muscles, and starting any new workout routine is intimidating. I’ve tried lifting, Pilates, yoga, running (the worst for my body), and even spin classes. When I was living in New York City,…
Chronically Yours – a Column by Noura Costany
I’m terrible at asking for help. It’s important to me to prove that I can handle anything, despite my disability with Cushing’s disease. I have high expectations for myself and big goals I’m striving to achieve, and I don’t want to rely on anyone else to reach them. But…
My pregnancy is both high risk and low risk, which can be a bit confusing to explain. Because of my Cushing’s disease and polycystic ovary syndrome, my partner and I decided to pursue in vitro fertilization (IVF). I’m currently 16 weeks pregnant, and while my pregnancy has been going…
Recently, an image depicting a “disability hierarchy” has gone viral on social media, sparking controversy within the disability community. The pyramid has three levels that seem to indicate the severity of one’s disability: Wheelchair users are at the top, people with limb differences and other visible disabilities are in…
I have Cushing’s disease, so I always travel with a mask. That’s because whenever I’ve gotten sick with something like COVID-19 or norovirus, it’s taken me out for weeks and posed great risk to my health. Even a common cold has landed me in bed for several days. That…
I’ve previously written about the spoon theory, which posits that different tasks require a certain amount of energy, or number of “spoons,” to complete. Those of us with chronic illness have a limited number of spoons each day, and tasks cost us more spoons than they cost a healthy…
Last week, I announced that my partner and I are expecting our first child in February. We couldn’t be more excited about this development and are pumped to become supercool parents next year. After struggling through in vitro fertilization, we’re grateful we’ve made it this far and hope our…
You might’ve guessed it from my recent columns about parenthood, my limited posting on social media, or these headlines, but surprise, I’m pregnant! I had a frozen embryo transfer on June 4 and found out I was pregnant four days later. We wanted to keep it a secret…
The 1998 film “Sliding Doors” (spoiler alert) follows a woman, Helen, in two split timelines. In one, she catches her train home, finds her boyfriend cheating, starts her own business, and falls in love. In the other, she misses the train and, for a while, her life is…
When I’ve noted publicly that my husband and I are going through the process of in vitro fertilization, I’ve received a lot more backlash than expected. Some said they’d never try this hard to have a kid, while others mentioned that perhaps we shouldn’t bring children into this troubled world.
Recent Posts
- FDA rejects relacorilant for Cushing’s-related high blood pressure
- Study supports Isturisa as first-line ectopic Cushing’s treatment
- After some scary complications, I finally gave birth to a baby girl
- Rare dual diagnosis explains man’s chronic high blood pressure: Report
- Woman with recurrent Cushing’s disease has 2 successful pregnancies
- Real-world study backs Isturisa for non-pituitary Cushing’s forms
- New research shows Cushing’s adds hidden fat BMI may overlook
- Isturisa exposure early in pregnancy may be less risky than thought
- Alternative neck access allows doctors to complete key test
- A pregnancy complication leads to yet another hospital admission