It hits me like a ton of bricks every single time. My stomach starts to knot together, I feel myself gagging, and I know that if I so much as breathe wrong, I’ll end up on my knees throwing up everything I’ve eaten in the past 24 hours. The nausea…
In the past year, as I’ve been dealing with a recurrence of Cushing’s disease, I’ve found myself needing a wheelchair for myriad reasons. My bones are brittle, my muscles are weak, I have vision issues, and I’m at risk of fainting. Furthermore, I have extreme fatigue, which will only…
I’ve often thought that my chronic illness is a burden on me and everyone else around me. Because of this mindset, I’ve found myself apologizing for it. When my medicine caused me to vomit in front of my in-laws, I was embarrassed. When I hit a low point and…
As of this writing, I’m preparing to travel from New York to Michigan to visit my brother. It’s my first time flying in over a year, and I’m a little nervous. Traveling with a chronic illness like Cushing’s disease can be immensely overwhelming, as it’s very different from traveling…
I wake up around 7:30 a.m. to the sound of my alarms. I snooze them one, two, three times. I turn off the humidifier that sits by my bed to counter the dryness that’s been leaving me with bleeding lips and peeling skin. I finally drag myself out of bed…
Cushing’s is a fickle disease. There are days when I can walk without my wheelchair, grab dinner with a friend, and make my way home safely without a problem. There are also days when I can’t move 5 feet without my wheelchair, have night blindness, and need…
It’s happening again. I’m at a social event, and I start to feel it. My head hurts. My vision blurs. I begin to dissociate, feeling myself falling away from where I am. I try so hard to focus, to pay attention to the blurring swirls in front of me telling…
Having a chronic illness is hard in so many ways. It’s hard on your body, it’s hard on your psyche, it’s hard on your life, and it’s hard on your caregiver. As much as I respect, trust, and love my caregiver for all he’s done for me, I have…
Much of my journey with Cushing’s disease has involved sharing my treatment options and choices with others in the community. This is largely because I had so much difficulty deciding on a treatment path. Thoughts swirled in my mind constantly. What if I chose the wrong option…
I’m not sure if this is a universal sentiment in the chronically ill community, but it seems like every time I have a doctor appointment, it consumes my entire day. I’ll sit at the computer, waiting for the virtual appointment to start, knowing that it won’t come for several more…
Get regular updates to your inbox.