Columns

I’ve been there a thousand times. Since I’m open about my illness online, people are acutely aware that I’m sick with cyclic Cushing’s disease. When I haven’t seen someone for a long time, they cock their head at me, their eyes fill with pity, and they ask in a…

Living with Cushing’s disease can feel very different from living a healthy life. With Cushing’s, we patients often have flare-ups, which are moments when our condition acts up and we experience more symptoms. For me, these symptoms include leg pain, migraines, sensitivity to light and…

Note: This column describes the author’s own experiences with ketoconazole, spironolactone, tirzepatide, and several supplements. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Cushing’s disease has multiple treatment options. During my first occurrence in 2020,…

This column is dedicated to something that most Cushing’s disease patients have experienced: the dreaded MRI. I’d almost forgotten what an anxiety-inducing experience it can be until I had another scan done last week. Cushing’s disease is typically caused by a tumor in the pituitary gland, which…

Note: This column describes the author’s own experiences with ketoconazole, Mounjaro (tirzepatide), spironolactone, and supplements. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I was diagnosed with Cushing’s disease three years ago. Since then, it has…

People with chronic illnesses live differently than those without them. This was a hard reality for me to grasp. I wanted my life to stay the same as it was before I found out I had Cushing’s disease. As frustrating as it may be, that’s really not an option.

Throughout my Cushing’s disease journey, I’ve learned many skills that have helped me navigate the diagnosis and treatment processes. Among them are the importance of advocacy at doctor appointments, including helping physicians understand what I’m experiencing by documenting my symptoms. I also had to…

Dealing with Cushing’s disease can be hard, and recently I’ve had more bad days than good ones. My goal is to maintain a positive attitude, no matter how frustrating life gets. Recently, I’ve been working on routines for the days when my cortisol is low, which makes me…

Emotional scarring from Cushing’s disease wasn’t something I predicted, but everywhere I turn, I discover residual feelings from that experience. I’m 13 weeks postpartum with my first baby, and I hadn’t realized until I gave birth the extent of emotional and psychological turmoil Cushing’s put me through before…

I recently had to lower my dosage of ketoconazole, one of the medications I take to treat my Cushing’s disease, because of liver problems. It always takes me some time to adjust to changes in medication, especially when it comes to my Cushing’s treatment. Since my…