Chronically Yours— Noura Costany

Since my diagnosis with Cushing’s disease in 2020, I’ve felt more alone than ever. My friends and family are very loving, and they want to understand, but I’ve needed to connect with people who have been through the…

Cushing’s disease is known to cause osteoporosis, a condition that weakens the bones. For me, adjusting to this issue was devastating. It has defeated me over and over, forced me to take time off work, and required…

I’m currently not taking any of my medications for Cushing’s disease and polycystic ovary syndrome to prepare for the first steps of in vitro fertilization. My husband and I are freezing embryos so that we’ll have…

My partner and I are knee-deep in the complicated and stressful process of freezing embryos. To have a successful procedure, I had to stop taking all of my medications for Cushing’s disease and other conditions two weeks…

Having Cushing’s disease has changed me in a thousand ways. In some ways, I’m better off. I’m kinder, I have an amazing community full of chronically ill friends, and I’ve become an advocate for people with Cushing’s.

Living with Cushing’s disease is a daily battle. With insomnia, weight gain, vision problems, and bone density issues, managing my symptoms takes up a large part of my day, every day. Cushing’s disease can be debilitating;…

Slow-healing wounds have been one of the worst symptoms of Cushing’s disease for me. The situation hasn’t improved, even with medication. Every time I get a cut, bruise, or burn, it seems to linger forever. I have…

I’ve always had difficulty with taking up space. But after I became chronically ill with Cushing’s disease, it’s been even harder for me to simply exist without feeling like a burden. I often worry about how my…

My partner and I have made the exciting but difficult decision to freeze embryos, which will allow us to preserve our fertility for when we’re ready to have children. Our reasons for this are simple. Both Cushing’s…

I love to travel. Seeing new places is inspiring, and getting a much-needed break from the city is refreshing. However, traveling is different for me now that I have Cushing’s disease. In the past, I could jump on…

One symptom of Cushing’s disease that really affected me was hair loss. My hair is my favorite feature; it’s curly like my mom’s, which always made me feel beautiful. Watching it fall out in clumps was traumatizing and…

Cushing’s disease survivors may experience myriad symptoms, including forgetfulness and difficulty concentrating. These cognitive issues are often known as the infamous brain fog. For me, this symptom feels exactly as it sounds: a fog. I’m out…