Chronically Yours— Noura Costany

Halloween was just the start of the holiday season. I’m now looking forward to Thanksgiving, Christmas, and New Year’s, as well as my wedding anniversary and several birthdays. While I adore this time of year, it comes with challenges.

Because of major muscle and bone issues caused by my Cushing’s disease, I’ve been an ambulatory wheelchair user, which means I can sometimes move independently but use my wheelchair when I feel I need it. Through treatment,…

Getting diagnosed with Cushing’s disease in 2020 changed my life — and my career path. I’d been out of college for only a year when I became sick and had to quit my job. I could barely get out…

Some of the most difficult symptoms I deal with from chronic illness are vision problems. It’s something I haven’t talked about publicly before. Four years ago, around the time I was diagnosed with Cushing’s disease, I was…

In early October, I traveled alone for the first time in a while. Usually I travel with friends, family, or my partner, but this time, I…

I cannot emphasize enough the importance of community. I adore my friends and family, and I’m so grateful for all their help and support. I didn’t spend my entire life sick, but became ill with Cushing’s disease at…

There’s a popular trend on TikTok right now called the “everything shower.” This is basically a long shower routine that involves, well, everything — shaving, exfoliating, washing your hair and skin, and all that jazz. I’d never…

For a while now, I’ve been sharing my story on social media and here at Cushing’s Disease News. In many ways, it’s been a breath of fresh air. I get so many positives from being part of this…

Recently, I was the bridesmaid at my friend’s wedding, but I was the only one using a mobility aid. Unfortunately, that made me feel a little self-conscious. As we were discussing how to walk down the aisle, I…

Because of ongoing health issues, including Cushing’s disease, I’ve been exhausted lately. I have to take several naps a day just to make it through, and most of the time I’m just hoping to be able to…

I’ve spent the last hour staring at my computer. I need to write and get my work done, but my fingers don’t seem to want to move. Everything feels difficult this week. Showering, sleeping, and even just thinking feel…