Our daughter was born at 27 weeks, and we’ve spent the past two months in the neonatal intensive care unit (NICU). It’s been an emotional and challenging journey, but now we’re finally nearing the end. In the next few weeks, we expect to bring our little girl home. While we’re…
Chronically Yours— Noura Costany

Noura Costany (they/them) is a writer from Queens, New York. They were originally diagnosed with cyclical Cushing’s disease in 2020, and their pituitary adenoma recurrence was confirmed in 2022. Noura is hoping the column “Chronically Yours” will help spread the word about cyclical Cushing’s disease, create an online community for those struggling with chronic illnesses, and bring light to inequality that is often overlooked in healthcare systems. You can catch Noura on TikTok and Youtube @chronicallyyours_.
A few weekends ago, my family and I all crammed into a car and drove to Pennsylvania from our home in Michigan for my beloved grandmother’s funeral. Since we had a toddler and a 7-month-old in the car, eight hours turned into 12. That long car ride was followed by…

“It’s completely fine! No big deal,” I find myself muttering again and again as people ask how I’m doing. I laugh off how serious my situation is, quickly changing the subject. But then, at home, I end up staring at the wall and crying myself to sleep. As someone with…
I’m six weeks postpartum and have so much to reflect on. My water broke at 25 weeks, and I gave birth to my daughter at 27.5 weeks. The birth involved a lot of complications, including preeclampsia, a full placental abruption, an infection, and a loss of oxygen. All…
On Nov. 25, I gave birth to a beautiful baby girl through an emergency cesarean section. However, the story doesn’t start there. Two weeks earlier, I awoke in the middle of the night to my water breaking at only 25 weeks pregnant. My husband and I rushed to the…
It was 4:30 a.m. when I sat up in bed, eyes wide open. As I looked down at myself, I was filled with embarrassment. Had I just wet the bed? I rushed to the bathroom, feeling more humiliated than anything. I was about 25 weeks pregnant and couldn’t believe this…
“Let’s go around the table and share what we’re thankful for.” It’s the typical question we all hear during Thanksgiving. For me, my answer never changes. I’m incredibly thankful for my partner, who is not only an amazing husband but also a fantastic caregiver. I’m so grateful to have him…
“We need you to come to the hospital.” I never expected to hear those words when I did. I was 25 weeks pregnant, and everything had been going relatively smoothly. Sure, I’d dealt with some minor issues like skin problems and fatigue, but nothing alarming. A few days before…
Cushing’s disease has affected my skin for more than five years now. I started noticing skin issues in 2020, and now they’re all starting to reappear. I’ve been off my Cushing’s medications for about seven months because I’m pregnant. The drugs could be dangerous for my baby,…
I’m more than halfway through my pregnancy, which seems to be going incredibly fast. The egg retrieval procedure was last year, and our first embryo transfer was last June. My partner and I were lucky the first transfer worked, and now I’m over 23 weeks pregnant. It’s been an exciting…
I turn 30 in a few months, which has me reflecting on how my life has unfolded. Have I done enough to give back to others? Am I as far along with my career and other ambitions as my peers are? Reflecting helps me outline the things I still want…
I am a big believer in science, and I’m grateful that many vaccinations exist to keep me healthy and safe. But I also tend to have strong reactions to vaccines, partly due to my Cushing’s disease. Cushing’s disease weakens the muscles and thins the skin, which means injections can…
I generally like my health insurance plan, because it covers a lot of what I need. But I have Cushing’s disease, which is complex and can lead to complications with my insurance coverage. Here’s a recent example: Step one: I had a regular checkup with my OB-GYN. Because I…
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