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Eight is the number of doctors who didn’t listen.  Five is the number of diagnoses that were wrong. Two is the number of doctors who referred me to a psychiatrist for “making up” too many symptoms. Four is the number of new doctors who finally listened to me and…

Since battling a pituitary tumor and Cushing’s disease, I have noticed that many other patients share similar concerns about types of support that are limited or unavailable. I believe there should be a program for Cushing’s patients that addresses these issues and provides us with assistance. Three key…

Our bodies hold memories — memories that are sometimes represented by visible scars. These memories can also be invisible, but they leave an everlasting imprint, too, through heavy emotions. Our bodies are keepsakes of the things we’ve experienced, and sometimes it’s hard for us to feel proud of these…

I used to think happiness was being skinny, in both sickness and in health. Beauty meant pain, and I was willing to suffer for it. Perhaps this superficial outlook on life was caused by my childhood experience of growing up as an ethnic minority and not having anyone that looked…

One of the most frustrating experiences is going to see a physician about symptoms you’re having and being told there’s nothing wrong. Even worse is when you go to another physician who relies on the previous physician’s notes to make a diagnosis. Unfortunately, this story is all too…

Hospitalizations can be difficult, especially if it’s your first time staying overnight. It’s uncomfortable not to be in your own bed, and the food usually isn’t the greatest, especially if your doctor has recommended a particular diet, such as low sodium or low carb. When I had transsphenoidal surgery…

Ellijahna Victoria. 27. Former journalist. Writer. Media adviser. Cushing’s survivor. Wait, what? Describing myself as a Cushing’s survivor still feels weird. This wasn’t how my story was supposed to go. But of course, that’s life — things don’t always go as planned. My storm began in late 2015. Back…

Dealing with a medical condition of any kind is difficult. Often the focus is on the things we’re no longer able to do. I’d like to take a different perspective and look at how strong we are — mentally, physically, and for some, spiritually. First, let’s look at mental…

What is postoperative care like when treating Cushing’s disease? In my experience, this question isn’t always fully answered by our physicians, and as patients, sometimes we must navigate the solutions on our own. After I had transsphenoidal surgery to remove a pituitary tumor in 2015, I expected…

It’s hard when you lose friends. It’s even harder when you lose them because you can’t invest the same amount of energy in them as you did before Cushing’s disease. People have their reasons and seasons in your life, but losing them is a hard pill to swallow. They…