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How a Phone App Helped Me Finally Get Diagnosed

Have you ever thought that your phone could play a vital role in your journey to a medical diagnosis? There’s so much information to be utilized from such a small device, including its internet capability, its camera, and the apps. Surprisingly, an app helped me significantly in my Cushing’s…

What I Learned During My Frustrating Journey to Diagnosis

Getting diagnosed with Cushing’s disease was a tricky process for me, and it often can take a long time. While some in my community have been struggling with symptoms for years, a few of us received our diagnoses rather quickly. Here’s a bit of history to preface my advice.

The Importance of Having Friends Who Understand Your Disease

In the midst of my disease, I felt very alone. Invisible diseases like Cushing’s tend to make life harder, because one shows no outward signs of an illness. Those who haven’t been through something similar may have a hard time relating to the hardships. Therefore, I believe being friends with…

Seeing Beyond the Stereotypes

There’s more to people than meets the eye, although the first thing we often notice about someone is how large or small they are. When I was younger, I was always thin and in shape. I never had to try to maintain my weight, and well into college, I still…

A Letter to My Newly Diagnosed Self

Thinking back over the last few years following my recovery from Cushing’s disease, I still deal with some painful thoughts. To help process those thoughts, I wrote a letter to the person I was before my recovery, from the perspective of the person I currently am. In it,…

This Is What Trauma Looks Like to Me

When I hear the word “trauma,” I think about car accidents, fires, military deployments, and abuse. I think of movies with sad music and loud explosions, not the quiet hours at night trying to fall asleep despite the pain. Trauma has affected my mental health in a major way, but…

My Emotional Struggles with Cushing’s Brought Dark Days

During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before that, although I had always been shy, I usually felt comfortable around my closest friends and family. While I generally had been a quiet person, I also was bubbly at times, and I was…

How Cushing’s Syndrome Changed My Social Life

I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor believes the tumor in my adrenal gland began growing when I was a child. I had common Cushing’s symptoms when I was 10, but no weight gain. I’ve…