There’s more to people than meets the eye, although the first thing we often notice about someone is how large or small they are. When I was younger, I was always thin and in shape. I never had to try to maintain my weight, and well into college, I still…
Columns
Thinking back over the last few years following my recovery from Cushing’s disease, I still deal with some painful thoughts. To help process those thoughts, I wrote a letter to the person I was before my recovery, from the perspective of the person I currently am. In it,…
When I hear the word “trauma,” I think about car accidents, fires, military deployments, and abuse. I think of movies with sad music and loud explosions, not the quiet hours at night trying to fall asleep despite the pain. Trauma has affected my mental health in a major way, but…
During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before that, although I had always been shy, I usually felt comfortable around my closest friends and family. While I generally had been a quiet person, I also was bubbly at times, and I was…
I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor believes the tumor in my adrenal gland began growing when I was a child. I had common Cushing’s symptoms when I was 10, but no weight gain. I’ve…
I’ve always been an anxious girl. I had friends growing up, but I tended to stick close to my parents and spend time with adults rather than meeting kids my age. Over the years, my anxiety worsened, and I developed depression, too. But despite my challenges, I achieved good grades…
The hardest part about my Cushing’s disease journey has been recognizing its effect on my mental health. Prior to diagnosis, life was confusing. I didn’t know why I was feeling the way I did. My symptoms were so gradual that when I told friends and family I was feeling…
No matter what part of the Cushing’s journey you are on, self-care is extremely important. I have put together a list of reminders that helped me cope with Cushing’s disease. Even though I have recovered from Cushing’s, I only have one adrenal gland, so I often get tired if…
Finding Love for My Ugly Disease
Welcome to Vanessa Nguyen’s “My Pretty Ugly Disease,” a new Cushing’s Disease News column. If you look at me today, you would not know I was once a Cushing’s disease patient. The happy-go-lucky person I am now was once anxious and depressed, had acne and panic attacks, and wore a…
Hey, everyone! If you’re a post-operation Cushie, you know that the unknowns throughout recovery are plentiful. Are you feeling poorly because you’re about to go into adrenal insufficiency? Is whatever you’re feeling just a normal part of recovery? How long should you be feeling poorly? I get…
Recent Posts
- Spinal fractures can occur early in Cushing’s disease, study finds
- Long-term metyrapone led to severe effects for man, 80, with Cushing’s
- Restarting Cushing’s disease medication can be tricky
- Surgery success in Cushing’s marked by low morning cortisol levels
- Doctors suspect another pituitary tumor, so why isn’t surgery an option?
- High cortisol linked to 27% of difficult-to-treat high blood pressure cases
- AI-designed molecule may provide safer Cushing’s treatment
- Raising awareness of the mental health effects of Cushing’s disease
- Older Cushing’s patients more likely to need long-term steroids after surgery
- CSRF goals for Cushing’s awareness month: Educate, fund vital research