Hey, everyone! This week, I want to get a little more personal. Many readers have asked how I dealt with Cushing’s disease. So, I want to share that part of my story with you. Me in 2014. (Photo by Catarina Louro-Matos) In some ways, dealing with Cushing’s…
Columns
Hey, everyone! In last week’s column, I wrote a list of things that ease post-surgery anxieties. The aftermath of Cushing’s causes intense anxiety, and some of us develop new phobias. This is absolutely normal behavior when coping with post-traumatic stress disorder (PTSD), which can develop from fighting a life-altering…
Hey, everyone! Hope this week was a good one for all of you. In this column, I want to touch on the subject of post-surgery anxieties and how to cope with them. Post-traumatic stress disorder (PTSD) following Cushing’s disease is a real issue many of us face.
Hey, everyone! Let’s discuss the huge misconception that survivors only get better and better with each day after surgery. I’m about to drop a huge truth bomb on you:Â You’re going to have hellish days. Sorry for being blunt, but a realistic attitude is best. If you believe you’re…
What to Expect After a Diagnosis
Hey, everyone! Lately, I’ve been getting a lot of questions online about what to expect once you receive a diagnosis. There are a ton of different ways things can go after an official diagnosis, and I only have one version. That version is my personal experience. Since I…
Note: I wrote other letters to patients awaiting diagnosis, those who have received surgery, and those who are years post-surgery. You can read them here. Dear Caregivers, On behalf of the Cushing’s community, thank you. Thank you for everything you do for the person you care for…
Happy Friday once again, everyone! I hope you all enjoyed my series of open letters in the past few weeks. I know how lonely and scary dealing with Cushing’s disease can be, so I hope you found some comfort in reading them. There is a light at…
Note: I wrote two previous Cushing’s letters to patients awaiting diagnosis and those who have received surgery. You can read them here. Dear Cushing’s Survivor Veteran, How have the past years been treating you? I hope with more good than bad. I’m just under two years post-operation,…
Note: I wrote a letter to Cushing’s patients last week. If you’re currently awaiting treatment, click here to read it. I also will write a letter soon for those a couple of years or more into remission. Dear Cushing’s Survivor, You made it. You made it past the…
Note to readers: I will be writing a few of these, so please don’t feel as though your portion of the journey isn’t acknowledged 🙂 Dear Fellow Cushing’s Patients: You’re currently struggling, and struggling probably doesn’t even feel like it allows anyone to grasp what you’re currently…
Recent Posts
- New Cushing’s disease treatment option reaches Canada with Isturisa
- I’m trying to be more honest about how medical trauma affects me
- CRH test may replace invasive method in diagnosing Cushing’s disease: Study
- Unexpected insulin resistance exposes rare Cushing’s disease diagnosis
- The challenges of managing Cushing’s disease during the postpartum period
- Test may be ‘practical’ alternative for diagnosing Cushing’s in kids
- Man’s aggressive salivary gland cancer triggers Cushing’s syndrome: Report
- FDA rejects relacorilant for Cushing’s-related high blood pressure
- Study supports Isturisa as first-line ectopic Cushing’s treatment
- After some scary complications, I finally gave birth to a baby girl