Chronically Yours— Noura Costany

An illustration depicting a person with curly hair writing at a desk, with papers whirling in the air.

Noura Costany (they/them) is a writer from Queens, New York. They were originally diagnosed with cyclical Cushing’s disease in 2020, and their pituitary adenoma recurrence was confirmed in 2022. Noura is hoping the column “Chronically Yours” will help spread the word about cyclical Cushing’s disease, create an online community for those struggling with chronic illnesses, and bring light to inequality that is often overlooked in healthcare systems. You can catch Noura on TikTok and Youtube @chronicallyyours_.

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What I wish people understood about living with Cushing’s disease

I was diagnosed with Cushing’s disease in 2020 after several years of suffering and searching for answers. Since then, many different people have told me their opinions on my illness or given me unsolicited advice. For instance, they’ll say that using my wheelchair less will help my muscles or ask…

Noura Costany

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Choosing a treatment plan was hard after a recurrence of Cushing’s

Much of my journey with Cushing’s disease has involved sharing my treatment options and choices with others in the community. This is largely because I had so much difficulty deciding on a treatment path. Thoughts swirled in my mind constantly. What if I chose the wrong option…

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What dreaded doctor appointment anxiety feels like and how I respond

I’m not sure if this is a universal sentiment in the chronically ill community, but it seems like every time I have a doctor appointment, it consumes my entire day. I’ll sit at the computer, waiting for the virtual appointment to start, knowing that it won’t come for several more…

Columns

What the highs and lows of Cushing’s disease look like for me

Cortisol: It’s one of the hormones involved in the body’s fight-or-flight response. Feeling anxious about a test? You might be able to thank cortisol for that. Think everyone hates you? Perhaps it’s cortisol. Most people don’t know that cortisol can also make you depressed, like on those…


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