Chronically Yours— Noura Costany

I recently had what I call a “day of doctors.” I had multiple specialist appointments coming up, so I planned them all for the same day. First, I met with a hematologist to figure…

I spend a lot of time talking with other people who are chronically ill. There’s something special about having a friend who truly understands everything I’ve been through with Cushing’s disease. Recently, I’ve…

Last weekend, my husband and I took a trip upstate to see my family. We left late, so by the time we were on our way, it was dark outside. With an iced coffee…

My health has been drowning me lately. Not only did I have to deal with COVID-19, but also it’s the time of year when many of my regular medical appointments take place. I…

I looked around my apartment last week and realized I had medication everywhere. My coffee table had piles of pill bottles, my counter was full of Sharps containers and syringes, and my drawers were…

Last week was one of the worst weeks I’ve had in a long time. My husband and I were supposed to visit my brother and his family in Michigan. I looked forward to seeing…

The constant, overwhelming feeling starts in my stomach and spreads throughout my entire body. I have to take several deep breaths so that I can focus. My anxiety has been taking over several…

It took me over two years to receive my Cushing’s disease diagnosis, mostly because my doctors weren’t well-versed in Cushing’s and didn’t know what to look for. I know that so many…

Having Cushing’s disease is a full-time job. On many days, I just want to curl up in bed, pull a blanket over me, and sleep all day because my body is so tired…

I grew up in New York City, which has continued to be my home. My parents have a gorgeous house on Staten Island. I went to high school and college in Manhattan. I spent…

I’ve been living with Cushing’s disease since 2018. Over the years, I tried out multiple doctors until I formed my perfect care team, which includes endocrinologist Theodore Friedman, MD, PhD. He…

Choosing a doctor, or a team of them, is a personal decision. Finding them can be an intimidating process, and it’s exhausting when we have to deal with people who are dismissive, who engage…