Slow-healing wounds are one of the Cushing’s disease symptoms that most annoy me. In the time that a regular person heals from a wound, my healing journey has barely scratched the surface. For example, I have an infected ingrown toenail that I’ve been warding off for two months and…
Chronically Yours— Noura Costany

Noura Costany (they/them) is a writer from Queens, New York. They were originally diagnosed with cyclical Cushing’s disease in 2020, and their pituitary adenoma recurrence was confirmed in 2022. Noura is hoping the column “Chronically Yours” will help spread the word about cyclical Cushing’s disease, create an online community for those struggling with chronic illnesses, and bring light to inequality that is often overlooked in healthcare systems. You can catch Noura on TikTok and Youtube @chronicallyyours_.
I was diagnosed with Cushing’s disease in 2020 after several years of suffering and searching for answers. Since then, many different people have told me their opinions on my illness or given me unsolicited advice. For instance, they’ll say that using my wheelchair less will help my muscles or ask…

Cushing’s disease can exacerbate any stress I have. It can get overwhelming, especially when it seems to be piling on — as happened during the recent election season. Many people with Cushing’s experience something like post-traumatic stress disorder before pituitary surgery because their anxiety is just too…
Halloween was just the start of the holiday season. I’m now looking forward to Thanksgiving, Christmas, and New Year’s, as well as my wedding anniversary and several birthdays. While I adore this time of year, it comes with challenges. Not only are the holidays expensive, but all of the commitments…
Because of major muscle and bone issues caused by my Cushing’s disease, I’ve been an ambulatory wheelchair user, which means I can sometimes move independently but use my wheelchair when I feel I need it. Through treatment, though, my muscles and bones have slowly strengthened, so I’ve been…
Getting diagnosed with Cushing’s disease in 2020 changed my life — and my career path. I’d been out of college for only a year when I became sick and had to quit my job. I could barely get out of bed, let alone work or study. It was impossible to…
Some of the most difficult symptoms I deal with from chronic illness are vision problems. It’s something I haven’t talked about publicly before. Four years ago, around the time I was diagnosed with Cushing’s disease, I was also diagnosed with visual snow syndrome, a condition that’s exactly…
In early October, I traveled alone for the first time in a while. Usually I travel with friends, family, or my partner, but this time, I was visiting a friend in Colorado on my own. I packed…
I cannot emphasize enough the importance of community. I adore my friends and family, and I’m so grateful for all their help and support. I didn’t spend my entire life sick, but became ill with Cushing’s disease at the age of 18. I never got better. It’s been almost…
There’s a popular trend on TikTok right now called the “everything shower.” This is basically a long shower routine that involves, well, everything — shaving, exfoliating, washing your hair and skin, and all that jazz. I’d never heard of the term before a few weeks ago, and while…
For a while now, I’ve been sharing my story on social media and here at Cushing’s Disease News. In many ways, it’s been a breath of fresh air. I get so many positives from being part of this community and that of Bionews, the parent company of this…
Recently, I was the bridesmaid at my friend’s wedding, but I was the only one using a mobility aid. Unfortunately, that made me feel a little self-conscious. As we were discussing how to walk down the aisle, I started to panic. Should we link to our partner’s arm or…
Because of ongoing health issues, including Cushing’s disease, I’ve been exhausted lately. I have to take several naps a day just to make it through, and most of the time I’m just hoping to be able to check off everything on my to-do list. Because I’ve been stuck…
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