During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before that, although I had always been shy, I usually felt comfortable around my closest friends and family. While I generally had been a quiet person, I also was bubbly at times, and I was…
Perpetually Cushie — Kat Rees
Having a rare disease is a struggle, and sometimes I feel alone, like nobody understands me. Luckily, when I was going through Cushing’s disease, my fiancé and now husband, Logan, provided me with emotional support. It was difficult on both of us. While I was experiencing physical pain, my hormones…

I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor believes the tumor in my adrenal gland began growing when I was a child. I had common Cushing’s symptoms when I was 10, but no weight gain. I’ve…
I’ve always been an anxious girl. I had friends growing up, but I tended to stick close to my parents and spend time with adults rather than meeting kids my age. Over the years, my anxiety worsened, and I developed depression, too. But despite my challenges, I achieved good grades…
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- What a Cushing’s disease flare-up looks like for me
- Rare case study details double Cushing’s syndrome/disease diagnosis
- Quality of life improvements vary widely after Cushing’s disease surgery
- How I explain Cushing’s disease to children
- Asedebart for Cushing’s disease granted orphan drug status in Japan
- Father, daughter with Cushing’s disease share CDKN1B variant
