During the years I dealt with Cushing’s disease symptoms, I increasingly became unlike myself. Before that, although I had always been shy, I usually felt comfortable around my closest friends and family. While I generally had been a quiet person, I also was bubbly at times, and I was…
Perpetually Cushie
— Kat Rees
Having a rare disease is a struggle, and sometimes I feel alone, like nobody understands me. Luckily, when I was going through Cushing’s disease, my fiancé and now husband, Logan, provided me with emotional support. It was difficult on both of us. While I was experiencing physical pain, my hormones…

I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor believes the tumor in my adrenal gland began growing when I was a child. I had common Cushing’s symptoms when I was 10, but no weight gain. I’ve…
I’ve always been an anxious girl. I had friends growing up, but I tended to stick close to my parents and spend time with adults rather than meeting kids my age. Over the years, my anxiety worsened, and I developed depression, too. But despite my challenges, I achieved good grades…
Recent Posts
- Early cortisol control linked to better outcomes in ectopic Cushing’s
- The blood tests that help me monitor my Cushing’s disease
- Scan misses some Cushing’s disease tumors in small pilot study
- Most of my life with Cushing’s disease is spent in the ‘in-between’
- Women with adrenal Cushing’s may have lower muscle mass, study finds
- As my mental health declines, I’m reaching out for help
- Uncontrollable Cushing’s weight gain can shatter a woman’s body image
- Maintaining a romantic relationship with a provider of intimate care
- Long-term topical steroid use linked to Cushing syndrome in adolescent
- Getting vaccinated takes a toll on me as someone with Cushing’s disease
