Updates

Author Details

Joe Pierce

July 10, 2020July 10, 2020
Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

The last patient has completed the last study visit in the withdrawal phase of the Phase 3 LOGICS clinical trial that is investigating the safety ... Read more
July 10, 2020July 10, 2020
National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, ... Read more
July 8, 2020July 8, 2020
Adrenal Cushing’s Syndrome More Common in Southeast Asia, Study Finds

The proportion of Cushing’s syndrome patients whose disease is caused by a tumor in the adrenal glands is higher in Asia than in other ... Read more
July 1, 2020July 1, 2020
Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows

Recordati’s Isturisa (osilodrostat) safely and effectively normalizes urinary levels of cortisol in people with endogenous Cushing’s syndrome other than Cushing’s disease, according to data ... Read more
June 24, 2020June 24, 2020
Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial

Isturisa (osilodrostat), an approved therapy for Cushing’s disease, continues to demonstrate high and sustained responses in patients for whom pituitary gland surgery is not an option or ... Read more

Subscribe to our mailing list

Get regular updates delivered to your email box.

Author Details

Joe Pierce

Thanks! Please check your email for a confirmation email.

May 22, 2018

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

News

Heart problems in Cushing’s syndrome patients may be partially reversed after tumor removal surgery, new research shows. For most patients in the study, the surgery also improved quality of life, mental and physical health, anxiety, and depression. However, 1 ... Read more

Updates

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

Adrenal Cushing’s Syndrome More Common in Southeast Asia, Study Finds

Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows

Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial

Subscribe to our mailing list

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say

Coalition Will Address Racial Disparities in Rare Disease Communities

Isturisa Now Available in France, Recordati Announces

Isturisa Now Available for Adult Cushing’s Patients in the U.S.

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports

AACE Issues Advice for Cushing’s Patients During Pandemic

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Adrenal Surgery Causes Persistent Decrease in Kidney Function in Cushing’s Patients, Study Suggests

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Adrenal Gland Surgeries May Be Safer if Incisions Made to Back

Study Recommends ARMC5 Gene Analysis for Cushing’s Patients With Bilateral Adrenal Masses

Cardiovascular Health, Quality of Life Improves After Cushing’s Syndrome Surgery, Study Shows

Pin It on Pinterest

Last Patient Completes Withdrawal Phase of Recorlev Trial for Cushing’s

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Adrenal Cushing’s Syndrome More Common in Southeast Asia, Study Finds

Isturisa Effective in Treating Cushing’s Syndrome Other Than Cushing’s Disease, Phase 2 Trial Shows

Isturisa Shows Sustained Responses in Cushing’s Disease Patients in LINC-4 Trial

Subscribe to our mailing list

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Cushing’s Patients Need Special Monitoring in Light of COVID-19, Experts Say

Coalition Will Address Racial Disparities in Rare Disease Communities

Isturisa Now Available in France, Recordati Announces

Isturisa Now Available for Adult Cushing’s Patients in the U.S.

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Enrollment Completed for Phase 3 Trial Testing Recorlev for Endogenous Cushing’s Syndrome

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

Pandemic Delays Trials Investigating Relacorilant as Endogenous Cushing’s Syndrome Treatment

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Isturisa for Cushing’s Syndrome Likely To Be Available in Europe Over Summer

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Pituitary Adenomas in Cushing’s Disease Differ Between Men, Women, Study Reports

AACE Issues Advice for Cushing’s Patients During Pandemic

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD’s Advice on COVID-19: You’re Stronger Than You Think

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Adrenal Surgery Causes Persistent Decrease in Kidney Function in Cushing’s Patients, Study Suggests

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

Adrenal Gland Surgeries May Be Safer if Incisions Made to Back

Study Recommends ARMC5 Gene Analysis for Cushing’s Patients With Bilateral Adrenal Masses

Pin It on Pinterest