Note: This column describes the author’s own experiences with ketoconazole, spironolactone, tirzepatide, and several supplements. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Cushing’s disease has multiple treatment options. During my first occurrence in 2020,…
Columns
This column is dedicated to something that most Cushing’s disease patients have experienced: the dreaded MRI. I’d almost forgotten what an anxiety-inducing experience it can be until I had another scan done last week. Cushing’s disease is typically caused by a tumor in the pituitary gland, which…
Note: This column describes the author’s own experiences with ketoconazole, Mounjaro (tirzepatide), spironolactone, and supplements. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I was diagnosed with Cushing’s disease three years ago. Since then, it has…
People with chronic illnesses live differently than those without them. This was a hard reality for me to grasp. I wanted my life to stay the same as it was before I found out I had Cushing’s disease. As frustrating as it may be, that’s really not an option.
Throughout my Cushing’s disease journey, I’ve learned many skills that have helped me navigate the diagnosis and treatment processes. Among them are the importance of advocacy at doctor appointments, including helping physicians understand what I’m experiencing by documenting my symptoms. I also had to…
Dealing with Cushing’s disease can be hard, and recently I’ve had more bad days than good ones. My goal is to maintain a positive attitude, no matter how frustrating life gets. Recently, I’ve been working on routines for the days when my cortisol is low, which makes me…
Emotional scarring from Cushing’s disease wasn’t something I predicted, but everywhere I turn, I discover residual feelings from that experience. I’m 13 weeks postpartum with my first baby, and I hadn’t realized until I gave birth the extent of emotional and psychological turmoil Cushing’s put me through before…
I recently had to lower my dosage of ketoconazole, one of the medications I take to treat my Cushing’s disease, because of liver problems. It always takes me some time to adjust to changes in medication, especially when it comes to my Cushing’s treatment. Since my…
Hello! I hope this column finds you doing well. My name is Jessica, and I was diagnosed with Cushing’s disease at the age of 30. A year after that, I had transsphenoidal pituitary resection surgery to remove a 3 mm pituitary tumor. Having Cushing’s disease is not…
I’m not sure if this experience is universal, but my Cushing’s disease symptoms change with the weather. Maybe I’m not so alone in that; Georgetown University Medical System, for instance, lists heat and cold intolerance among possible symptoms. I’ve learned over the years to manage most of these…
Recent Posts
- Targeted radiation therapy offers hope for tough Cushing’s cases
- Bone problems common in Cushing’s, but care varies across Europe: Study
- How Cushing’s disease has made me a better parent
- Blood thinner rivaroxaban prevents clots in ACTH-dependent Cushing’s
- Surgery offers best cortisol control for adrenal Cushing’s syndrome
- Turning negatives into positives keeps me out of the ‘why me’ pit
- Common Cushing’s test may miss aggressive tumors in some patients
- Weak bones, fractures prevalent in Cushing’s syndrome: Analysis
- We’re preparing to finally bring our newborn daughter home
- Surgery brings Cushing’s remission to 60% of patients over 20 years: Study