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The Letter to Myself I Needed to Write

Dear Me, I know what you’re thinking. There’s a desperate voice in your head begging for your body to return to the way it was before this disease. There are spiraling questions that seem to lead to no answers: “Why can’t I lose weight?” “What am I doing wrong?”…

How to Support a Loved One With Cushing’s Disease

When someone is hurting or struggling, we may find ourselves wanting to have all the answers for them. We may jump to offering solutions and making assumptions about what’s needed, but that isn’t always the best approach. Other times we may back off because we don’t know what to say…

The Power of Our Decisions in Recovery and Healing

Michael Corleone is a central figure in “The Godfather” film trilogy, played by Al Pacino. In the third film of the series, he refers to a life of crime when he declares, “Just when I thought I was out, they pull me back in.” So what does this have to…

Let’s Talk College and Cushing’s Disease

College is stressful, but adding a chronic disease to the mix can make taking classes even harder. I didn’t realize it at the time, but at some point during my interpreter training program for English and American Sign Language, from 2017 to 2019, a pituitary tumor caused me to…

In the Madness, There Can Be Beauty

March Madness is the time of year for sports fans and nonsports fans to get together and watch the magic take place. Pools are created at work, some with small, friendly wagers and others with a more hefty prize for the winner. As for the basketball tournament itself, this is…

How to Prepare for an Appointment With a New Doctor

Navigating the medical system can be extremely time-consuming and stressful, as it often involves significant coordination and planning. It’s especially difficult when you’re struggling with the symptoms you’re seeking help for. When I first saw a neuroendocrinologist for the symptoms I now know were caused by Cushing’s disease, I…

Learning to Accept My Body

Have you ever wanted to just tear all the fat off your body? Have you grown tired of the weight it bears on your self-esteem, and how every day it becomes harder to lift a foot and plant it in front of the other? What about being so frustrated from…

Turning Survivor’s Guilt Into Advocacy

Surviving a life-threatening event or other trauma can create guilt, even when others who’ve been through similar trauma may not have the same result. This condition is known as survivor’s guilt, and it’s an important mental health concern. A question related to this from an audience member during a…