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Much of my journey with Cushing’s disease has involved sharing my treatment options and choices with others in the community. This is largely because I had so much difficulty deciding on a treatment path. Thoughts swirled in my mind constantly. What if I chose the wrong option…

I’m not sure if this is a universal sentiment in the chronically ill community, but it seems like every time I have a doctor appointment, it consumes my entire day. I’ll sit at the computer, waiting for the virtual appointment to start, knowing that it won’t come for several more…

As social media has grown over the years, more users have started working as influencers — people who build a following based on their purported level of knowledge and expertise in a specific field. This includes health. Phrases like “weight loss supplements,” “balance your hormones,” and even “lower your cortisol”…

Cortisol: It’s one of the hormones involved in the body’s fight-or-flight response. Feeling anxious about a test? You might be able to thank cortisol for that. Think everyone hates you? Perhaps it’s cortisol. Most people don’t know that cortisol can also make you depressed, like on those…

Social workers like me learn the importance of advocacy. We advocate for our clients and strive to help them improve their lives in one way or another. Although we advocate for others, we sometimes forget to advocate for ourselves. When I started experiencing symptoms of Cushing’s disease, I realized…

About three years ago, my body began to change. Movement became more difficult and running long distances was increasingly painful. I watched as the scale slowly ticked upward, purple marks started showing up on my stomach, and my face become noticeably round. I had no idea what was going on…

Three years ago, I started developing symptoms of Cushing’s disease. These symptoms included weight gain, deposits of fat at the base of my neck (called a buffalo hump), striae, bone pain, fatigue, and general weakness, among others. Initially, these symptoms developed slowly but were exacerbated over…

I don’t particularly like tight spaces that make obnoxious washer and dryer sounds, but I guess these machines come in handy if you’re trying to confirm a pituitary adenoma (or anything in the brain, really). An MRI, or magnetic resonance imaging, is an intimidating process for some. Oddly enough,…

It’s common for Cushing’s patients to develop health anxiety. Every little thing that seems off in our bodies can trigger worry or panic. This might result in excessively searching the internet and creating worrisome scenarios in our minds before observing the facts. I had a pituitary tumor removed…