As someone with Cushing’s disease, one of the biggest mistakes I’ve made is trying to have the same type of day that healthy people have, following the same schedules as my friends. Quotes along those lines, such as “We all have the same 24 hours in our day,” left…
Columns
I crave the summer and often find myself thinking of the waves — the ups and downs, the gorgeous sun hitting my face as the water moves high and then low, the beautiful, salty smell filling my nose. This winter, my health, compromised by my Cushing’s disease, has…
I never knew that Cushing’s disease could lead to fainting — until it happened to me. Fainting can be an incredibly overwhelming experience. For me, it starts in the stomach. I’ll feel awfully nauseous, like my stomach is flipping and turning. Then the dizziness hits, and all the…
Note: This column describes the author’s own experiences with tirzepatide. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. There have been many conversations about Ozempic (semaglutide), developed to treat type 2 diabetes, and similar medications that are used by…
Note: This column describes the author’s own experiences with prenatal vitamins and supplements. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. As someone with both Cushing’s disease and polycystic ovary syndrome (PCOS), having a baby isn’t an…
I’ve clawed my way through the same pitfalls over and over and over again: the self-doubt, the crippling lack of self-worth. Sometimes I feel like I’m in a wonderful place, as if I’ve put my anxiety behind me. Yet it always seems to come back in full force. Cushing’s…
This year, I have new motivation. I’m hoping to have a healthy pregnancy sometime between now and 2026, and to do that I need to change a few habits. I’m adding a few vitamins, working on cutting out processed food, and trying to be more consistent with my workout plan.
Lately, I’ve been getting my period every two weeks. While I work on getting that back to normal, I’m losing a lot of blood, and my body is especially fatigued because I lack iron. That was especially hard during the holiday season, when I was trying to put my…
Another year has come and gone. 2024 was a big year for me. I went through several medication changes and increases in dosages, an egg-freezing cycle, started a new job, and made a few big life decisions. I worked on writing a novel and shared my story with all…
“How are you feeling?” “Me? Oh, a bit better.” During the holiday season, I have a version of this conversation repeatedly. My family and friends have seen me at my worst, bedridden and throwing up, completely unable to function. Life with Cushing’s disease often feels like a roller coaster:…
Recent Posts
- Real-world study backs Isturisa for non-pituitary Cushing’s forms
- New research shows Cushing’s adds hidden fat BMI may overlook
- Isturisa exposure early in pregnancy may be less risky than thought
- Alternative neck access allows doctors to complete key test
- A pregnancy complication leads to yet another hospital admission
- Cushing’s patient’s psychiatric shifts tied to rapid Isturisa dose increase
- Years may pass by, but what I’m thankful for never changes
- Rare ‘double Cushing’s’ case highlights need to check cortisol
- Effective treatment found to ease depression, anxiety in Cushing’s
- High blood pressure and a history of Cushing’s land me in the hospital