Halloween was just the start of the holiday season. I’m now looking forward to Thanksgiving, Christmas, and New Year’s, as well as my wedding anniversary and several birthdays. While I adore this time of year, it comes with challenges. Not only are the holidays expensive, but all of the commitments…
Chronically Yours – a Column by Noura Costany
Because of major muscle and bone issues caused by my Cushing’s disease, I’ve been an ambulatory wheelchair user, which means I can sometimes move independently but use my wheelchair when I feel I need it. Through treatment, though, my muscles and bones have slowly strengthened, so I’ve been…
Getting diagnosed with Cushing’s disease in 2020 changed my life — and my career path. I’d been out of college for only a year when I became sick and had to quit my job. I could barely get out of bed, let alone work or study. It was impossible to…
Some of the most difficult symptoms I deal with from chronic illness are vision problems. It’s something I haven’t talked about publicly before. Four years ago, around the time I was diagnosed with Cushing’s disease, I was also diagnosed with visual snow syndrome, a condition that’s exactly…
In early October, I traveled alone for the first time in a while. Usually I travel with friends, family, or my partner, but this time, I was visiting a friend in Colorado on my own. I packed…
I cannot emphasize enough the importance of community. I adore my friends and family, and I’m so grateful for all their help and support. I didn’t spend my entire life sick, but became ill with Cushing’s disease at the age of 18. I never got better. It’s been almost…
There’s a popular trend on TikTok right now called the “everything shower.” This is basically a long shower routine that involves, well, everything — shaving, exfoliating, washing your hair and skin, and all that jazz. I’d never heard of the term before a few weeks ago, and while…
For a while now, I’ve been sharing my story on social media and here at Cushing’s Disease News. In many ways, it’s been a breath of fresh air. I get so many positives from being part of this community and that of Bionews, the parent company of this…
Recently, I was the bridesmaid at my friend’s wedding, but I was the only one using a mobility aid. Unfortunately, that made me feel a little self-conscious. As we were discussing how to walk down the aisle, I started to panic. Should we link to our partner’s arm or…
Because of ongoing health issues, including Cushing’s disease, I’ve been exhausted lately. I have to take several naps a day just to make it through, and most of the time I’m just hoping to be able to check off everything on my to-do list. Because I’ve been stuck…
Recent Posts
- Japanese children face years-long delays in Cushing’s disease diagnosis
- What happens when I push past my limits with Cushing’s disease
- Long-term corticosteroid use caused Cushing’s in 5 patients: Report
- Stuck at the intersection of anxiety and insomnia
- Cushing’s syndrome greatly raises risk of hospitalization for infections
- Tumor cells left behind in surgery can cause Cushing’s recurrence, per report
- Building strength, even with Cushing’s, so I can be there for my daughter
- Corcept gives FDA new relacorilant data in resubmitted application
- Toddler develops Cushing’s syndrome from topical steroid use
- Seeing is believing: How Cushing’s disease affects my vision