News

December 18, 2020December 18, 2020

Clinical Trial Will Test Fluasterone in Cushing’s Syndrome

News

SteroTherapeutics and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) are teaming up to conduct a Phase 2 clinical trial to determine the safety, ... Read more

December 18, 2020December 18, 2020

EURORDIS Award Contest Welcomes Photos of Life With Rare Disease

News, syndicated

The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life is like with a rare disease, while raising awareness through their work of these ... Read more

December 11, 2020December 11, 2020

Recorlev Lessens Cushing’s Symptoms, Eases Depression, SONICS Trial Data Show

News

Recorlev (levoketoconazole), Strongbridge Biopharma’s oral investigational therapy, lessens disease symptoms and depression, and improves quality of life among people with endogenous Cushing’s syndrome, according to data from the Phase ... Read more

December 4, 2020December 4, 2020

NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting

News, syndicated

To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients and their families, the National Organization for Rare Disorders ... Read more

December 2, 2020December 2, 2020

Epidural Steroid Injections May Increase Risk of Adrenal Insufficiency, Study Finds

News

People undergoing regular epidural steroid injections (ESIs) to ease back pain may be at increased risk of adrenal insufficiency, a preliminary study suggests. However, the researchers found no link ... Read more

November 26, 2020November 26, 2020

Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe

News, syndicated

The first wave of COVID-19 in Europe severely disrupted access to care and raised stress and anxiety in people with rare diseases, negatively affecting their health and well-being, according to ... Read more

November 25, 2020November 25, 2020

Rare Case of Cushing’s Disease Due to ‘Collision’ Brain Tumor Reported

News

Researchers report a very rare case of Cushing’s disease in a 34-year-old woman caused by a “collision” brain tumor, a tumor simultaneously consisting of a meningioma and a pituitary adenoma. ... Read more

November 18, 2020November 18, 2020

Patients With Ectopic Cushing’s Face Healthcare Challenges in Colombia, Study Says

News

Patients with ectopic Cushing’s syndrome face challenges in their healthcare management if they live in developing countries, according to a study of cases in Colombia that describes challenges unique ... Read more

November 18, 2020November 18, 2020

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

News, syndicated

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and patient registry. They shared about ... Read more

November 13, 2020November 13, 2020

Cushing’s Disease Linked to Rare Pituicytoma in Case Report

News

Although rare, pituicytomas should still be considered as a possible cause of Cushing’s disease in patients experiencing the typical symptoms of the disease, a case report highlights. The study, ... Read more