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June 19, 2019June 17, 2019

‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

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People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those of their caregivers. But most ... Read more

June 18, 2019

Temozolomide Effective Against Cushing’s Caused by Aggressive Tumors, Case Report Suggests

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The oral chemotherapy temozolomide might be an effective treatment for Cushing’s disease caused by aggressive tumors in the pituitary gland that continue to grow after surgery and taking other ... Read more

June 13, 2019June 13, 2019

Endoscopic Endonasal Surgery is Safe, Effective for Treating Cushing’s Patients, Study Concludes

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Clinical outcomes of Cushing’s disease patients who undergo endoscopic endonasal surgery to remove a pituitary adenoma are similar to those seen in patients who underwent previously used microscope-assisted techniques. ... Read more

June 11, 2019

Hormonal Stimulation Improves Tumor Detection in Cushing’s, Study Finds

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Giving corticotropin-releasing hormone (CRH) to Cushing’s disease patients helps improve the detection of pituitary tumors on positron emission tomography (PET) scans, increasing the chances of a more successful surgery, ... Read more

June 6, 2019

HRA Pharma Prepares Observational Post-Approval Study of Ketoconazole

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After receiving the approval of ketoconazole for the treatment of Cushing’s syndrome patients in the European Union, HRA Pharma is setting up to conduct a post-approval observation study that ... Read more

June 4, 2019

Cushing’s Patients with Excess Prolactin Respond Well to Dopamine Agonists, Report Suggests

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In some rare cases, Cushing’s disease patients have a benign pituitary tumor that produces several pituitary hormones in excess, rather than just the adrenocorticotropic hormone (ACTH). When these tumors also ... Read more

May 30, 2019May 30, 2019

Surgical Removal of Pituitary Adenomas Through the Nose Remains an Effective Treatment for Pediatric Patients, Study Finds

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Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment option for pediatric patients, despite its inherent technical difficulties, a new study ... Read more

May 27, 2019May 24, 2019

Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

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RaDaR, the catchy new name for the U.S. government-run Rare Diseases Registry Program, aims to help patient advocacy groups with limited resources build their own disease registries. The site ... Read more

May 21, 2019

EU Committee Recommends Giving Relacorilant Orphan Drug Status for Cushing’s Syndrome

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The European Medicine Agency‘s Committee for Orphan Medicinal Products (COMP) has recommended that Corcept Therapeutics‘ relacorilant receive orphan drug designation for the treatment of Cushing’s syndrome, the company announced in ... Read more

May 18, 2019May 28, 2019

Mifepristone May Benefit Patients with Mild Autonomous Cortisol Secretion, Pilot Trial Shows

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Mifepristone, a synthetic steroid commonly used to taper high blood sugar levels and diminish insulin resistance in patients with Cushing’s syndrome, may also be helpful in managing mild autonomous cortisol secretion ... Read more

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