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March 27, 2020March 27, 2020

Adrenal Surgery Causes Persistent Decrease in Kidney Function in Cushing’s Patients, Study Suggests

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People with Cushing’s syndrome who undergo surgery to remove one or both adrenal glands experience a persistent decrease in kidney function after one month that does not seem to worsen ... Read more

March 20, 2020March 20, 2020

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

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Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based nonprofit she chairs will see ... Read more

March 19, 2020March 19, 2020

Adrenal Gland Surgeries May Be Safer if Incisions Made to Back

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Making incisions through the back of the body, rather than the front, can lessen bleeding and shorten operation time during surgery to remove the adrenal glands, a new study ... Read more

March 17, 2020March 23, 2020

Study Recommends ARMC5 Gene Analysis for Cushing’s Patients With Bilateral Adrenal Masses

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More than half of the people with Cushing’s syndrome due to masses in both adrenal glands have disease-causing mutations the ARMC5 gene, a small study has found, suggesting that ... Read more

March 12, 2020March 12, 2020

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

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The number of treatments for children with rare diseases has grown over the past decade, according to a new study. However, despite the increase, nearly 7,000 rare diseases are still ... Read more

March 12, 2020March 23, 2020

Researchers Establish Cutoff Value for Dexamethasone in Cushing’s Tests

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While the diagnosis of Cushing’s syndrome is often based on a low-dose dexamethasone suppression test (DST), test results may be affected by differences in the metabolism of the steroid ... Read more

March 10, 2020March 10, 2020

FDA Approves New Oral Treatment Isturisa for Cushing’s Disease

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Isturisa (osilodrostat) is now approved in the U.S. for adults with Cushing’s disease for whom pituitary gland surgery is not an option or whose disease has returned after surgery, Recordati ... Read more

March 5, 2020March 5, 2020

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

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In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the ... Read more

March 5, 2020March 5, 2020

Metabolic Changes in Cushing’s Likely Mediated by Organ Interactions, Mouse Study Suggests

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Excess glucocorticoid levels in Cushing’s syndrome induces whole-body metabolic changes that are likely mediated by an inter-communication between different organs, a mouse study suggests. The study, “Correlation among body ... Read more

March 3, 2020March 3, 2020

Recordati Rare Diseases Will Market Signifor, Signifor LAR in U.S.

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Recordati‘s U.S. marketing rights for Cushing’s disease medications Signifor (pasireotide) and Signifor LAR will be handled by the company’s Recordati Rare Diseases subsidiary. The medications will be marketed through Recordati Rare ... Read more

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