I started developing Cushing’s syndrome at a very young age, though I wasn’t diagnosed until age 22. My doctor believes the tumor in my adrenal gland began growing when I was a child. I had common Cushing’s symptoms when I was 10, but no weight gain. I’ve…
Columns
I’ve always been an anxious girl. I had friends growing up, but I tended to stick close to my parents and spend time with adults rather than meeting kids my age. Over the years, my anxiety worsened, and I developed depression, too. But despite my challenges, I achieved good grades…
The hardest part about my Cushing’s disease journey has been recognizing its effect on my mental health. Prior to diagnosis, life was confusing. I didn’t know why I was feeling the way I did. My symptoms were so gradual that when I told friends and family I was feeling…
No matter what part of the Cushing’s journey you are on, self-care is extremely important. I have put together a list of reminders that helped me cope with Cushing’s disease. Even though I have recovered from Cushing’s, I only have one adrenal gland, so I often get tired if…
Finding Love for My Ugly Disease
Welcome to Vanessa Nguyen’s “My Pretty Ugly Disease,” a new Cushing’s Disease News column. If you look at me today, you would not know I was once a Cushing’s disease patient. The happy-go-lucky person I am now was once anxious and depressed, had acne and panic attacks, and wore a…
Hey, everyone! If you’re a post-operation Cushie, you know that the unknowns throughout recovery are plentiful. Are you feeling poorly because you’re about to go into adrenal insufficiency? Is whatever you’re feeling just a normal part of recovery? How long should you be feeling poorly? I get…
Two weeks ago, I ended my column by discussing the cold I got during my Portugal vacation in summer 2017 when I was six or seven months post-operation. Let’s continue that story. Many pharmacists and doctors in Portugal aren’t fully aware of Cushing’s disease, so I…
Welcome to the end of another week! For those of you who live in the U.S. had Thanksgiving last week, I hope you were able to spend time with your families, friends, and other loved ones while being thankful for everything you do have. In Canada, we celebrate Thanksgiving…
Hello, everyone! This week, I want to touch upon a topic I’m frequently asked about: my recovery. I want to start by making something clear: Cushing’s disease recovery is different for everyone. My recovery differs from those of my two friends, and mine is different from yours.
Hey, everyone! This week, I want to touch upon something that many Cushing’s patients deal with: others telling us how we should feel. While some people mean well, others get annoyed with us and think we’re overreacting. These interactions can be incredibly stressful, so I want to help…
Recent Posts
- Woman’s Cushing’s diagnosis missed before weight-loss surgery: Report
- How living with Cushing’s disease is like a modern-day ‘Moby-Dick’
- Negative MRI linked to lower surgery success rate in Cushing’s disease
- Woman’s ultra rare spinal condition caused by Cushing’s disease: Report
- I find myself struggling to manage the complications of Cushing’s disease
- Urine test improves reliability of Cushing’s syndrome diagnosis: Study
- Issues with brain’s ‘sewer system’ may spur cognitive problems in Cushing’s
- Struggling with a lack of privacy in life with chronic illness
- Cushing’s disease behind woman’s unexplained blood clots: Case study
- Relacorilant safe, works to control high blood pressure in Cushing’s: Study