Hello, everyone! This week, I want to touch upon a topic I’m frequently asked about: my recovery. I want to start by making something clear: Cushing’s disease recovery is different for everyone. My recovery differs from those of my two friends, and mine is different from yours.
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Hey, everyone! This week, I want to touch upon something that many Cushing’s patients deal with: others telling us how we should feel. While some people mean well, others get annoyed with us and think we’re overreacting. These interactions can be incredibly stressful, so I want to help…
Hey, everyone! This week, I want to get a little more personal. Many readers have asked how I dealt with Cushing’s disease. So, I want to share that part of my story with you. Me in 2014. (Photo by Catarina Louro-Matos) In some ways, dealing with Cushing’s…
Hey, everyone! In last week’s column, I wrote a list of things that ease post-surgery anxieties. The aftermath of Cushing’s causes intense anxiety, and some of us develop new phobias. This is absolutely normal behavior when coping with post-traumatic stress disorder (PTSD), which can develop from fighting a life-altering…
Hey, everyone! Hope this week was a good one for all of you. In this column, I want to touch on the subject of post-surgery anxieties and how to cope with them. Post-traumatic stress disorder (PTSD) following Cushing’s disease is a real issue many of us face.
Hey, everyone! Let’s discuss the huge misconception that survivors only get better and better with each day after surgery. I’m about to drop a huge truth bomb on you:Â You’re going to have hellish days. Sorry for being blunt, but a realistic attitude is best. If you believe you’re…
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What to Expect After a Diagnosis
Hey, everyone! Lately, I’ve been getting a lot of questions online about what to expect once you receive a diagnosis. There are a ton of different ways things can go after an official diagnosis, and I only have one version. That version is my personal experience. Since I…
Note: I wrote other letters to patients awaiting diagnosis, those who have received surgery, and those who are years post-surgery. You can read them here. Dear Caregivers, On behalf of the Cushing’s community, thank you. Thank you for everything you do for the person you care for…
Happy Friday once again, everyone! I hope you all enjoyed my series of open letters in the past few weeks. I know how lonely and scary dealing with Cushing’s disease can be, so I hope you found some comfort in reading them. There is a light at…
Note: I wrote two previous Cushing’s letters to patients awaiting diagnosis and those who have received surgery. You can read them here. Dear Cushing’s Survivor Veteran, How have the past years been treating you? I hope with more good than bad. I’m just under two years post-operation,…
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